Led by science, curiosity, and storytelling, the Global Hemophilia Report from BloodStream Media is an entertaining monthly journey through the investigations and... more
In this episode of the Global Hemophilia Report, we delve into the crucial role of Lived Experience Experts (LEEs) in... more
Our panel of subject matter and lived experience experts engage in a data-driven discussion about caregiver burden in hemophilia, historically,... more
On this episode of the Global Hemophilia Report, host Patrick James Lynch is on location in Madrid, Spain for the... more
In this episode, delve into the transformative journey of patient-reported outcomes measures (PROMs) within hemophilia care, exploring their evolution from... more
The topic of discussion for this episode leans more toward the scientific side but has huge clinical relevance. For today,... more
Gene therapy for hemophilia A and B now exists as a licensed, prescribable treatment option for patients in certain countries;... more
Join us as we shed light on the often-overlooked intersection of Post Traumatic Stress Disorder (PTSD) and Hemophilia, discussing innovative... more
The US National Research Blueprint (NRB). Thriving in the Face of an Inheritable Bleeding Disorder Begins with Community-Inspired Research. ... more
In this episode, we address the critical intersections of LGBTQ+ health and hemophilia care. Delving into the historical links with... more
On this episode, we will address defining sexual health and its importance to hemophilia care, best practices and standards for... more
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