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Global Hemophilia Report
Global Hemophilia Report
BloodStream Media

Led by science, curiosity, and storytelling, the Global Hemophilia Report from BloodStream Media is an entertaining monthly journey through the investigations and... more

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Lived Experience Experts: Taking Their Rightful Place at the Research Table

In this episode of the Global Hemophilia Report, we delve into the crucial role of Lived Experience Experts (LEEs) in... more

27 Jun 2024 · 50 minutes
Caregivers and Novel Therapies - Alleviating or Replacing Concerns?

Our panel of subject matter and lived experience experts engage in a data-driven discussion about caregiver burden in hemophilia, historically,... more

30 May 2024 · 40 minutes
World Hemophilia Day

On this episode of the Global Hemophilia Report, host Patrick James Lynch is on location in Madrid, Spain for the... more

26 Apr 2024 · 25 minutes
Translating Patient-Reported Clinical Outcomes into Patient-Informed Clinical Research Outcomes

In this episode, delve into the transformative journey of patient-reported outcomes measures (PROMs) within hemophilia care, exploring their evolution from... more

28 Mar 2024 · 50 minutes
Understanding Factor VIII & IX - In Coagulation and Beyond - How Much Are We Still Missing?

The topic of discussion for this episode leans more toward the scientific side but has huge clinical relevance. For today,... more

15 Mar 2024 · 48 minutes
Hemophilia Gene Therapy Redux – The End of the Beginning?

Gene therapy for hemophilia A and B now exists as a licensed, prescribable treatment option for patients in certain countries;... more

25 Jan 2024 · 1 hour,
PTSD & Hemophilia

Join us as we shed light on the often-overlooked intersection of Post Traumatic Stress Disorder (PTSD) and Hemophilia, discussing innovative... more

28 Dec 2023 · 54 minutes
The US National Research Blueprint (NRB)

The US National Research Blueprint (NRB). Thriving in the Face of an Inheritable Bleeding Disorder Begins with Community-Inspired Research.   ... more

30 Nov 2023 · 59 minutes
LGBTQ+ Health- Addressing Specific Needs in Comprehensive Hemophilia Care

In this episode, we address the critical intersections of LGBTQ+ health and hemophilia care. Delving into the historical links with... more

26 Oct 2023 · 57 minutes
Sexual Health- An Unaddressed Need in Comprehensive Hemophilia Care

On this episode, we will address defining sexual health and its importance to hemophilia care, best practices and standards for... more

28 Sep 2023 · 51 minutes
Global Hemophilia Report
Lived Experience Experts: Taking Their Rightful Place at the Research Table
Global Hemophilia Report