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Just Listen: Voices of PK Deficiency Podcast
Just Listen: Voices of PK Deficiency Podcast
BloodStream Media

SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about pyruvate kinase deficiency (PK Deficiency) and is intended for patients, caregivers,... more

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Episodes

Replay: My Dad Has PK Deficiency

What does it mean when a parent has pyruvate kinase deficiency? On today’s episode we welcome back Nathan Thompson, a... more

23 Jan 2024 · 15 minutes
Peak Registry

On this episode, Dr. Rachael Grace is in conversation with Carl Lander, Chair of the Steering Committee for the Peak... more

29 Nov 2023 · 27 minutes
Genetics in Pyruvate Kinase Deficiency

On this episode, Dr. Rachael Grace is in conversation with Claire Egan, Senior Genetic Counselor with InformedDNA, to talk all... more

25 Oct 2023 · 42 minutes
REPLAY: MythBusters Part 1 - Pyruvate Kinase Deficiency Edition

Dr. Rachael Grace returns with patient advocate (and PK Deficiency TikTok influencer) Karla Chichester. On this episode, Dr. Grace and... more

27 Sep 2023 · 24 minutes
Iron Overload with Dr. Sujit Sheth

On this episode, Dr. Rachael Grace is in conversation with Dr. Sujit Sheth about iron overload. You’ll learn about iron... more

23 Aug 2023 · 31 minutes
Definitive Diagnosis

Our guest today is Dolores Dumas. Dolores is a 73-year-old living with PK deficiency, and was diagnosed as a teen... more

17 Jul 2023 · 15 minutes
My Dad Has PK Deficiency

What does it mean when a parent has pyruvate kinase deficiency? On today’s episode we welcome back Nathan Thompson, a... more

19 Jun 2023 · 15 minutes
Aging with Pyruvate Kinase Deficiency

On today’s episode, we travel to New Orleans for a discussion about aging with pyruvate kinase deficiency (PKD) with returning... more

24 May 2023 · 15 minutes
REPLAY: Pyruvate Kinase Deficiency Foundation

On this episode, we interview Alejandra Watson and Laura Miller D'Angelo of Pyruvate Kinase Deficiency Foundation. We learn more about... more

26 Apr 2023 · 27 minutes
Understanding Clinical Trials

On today’s episode, your host, Dr. Rachael Grace is in conversation with Dr. Matthew Heeney. Dr. Heeney's research is focused... more

29 Mar 2023 · 27 minutes
Just Listen: Voices of PK Deficiency Podcast
Replay: My Dad Has PK Deficiency
Just Listen: Voices of PK Deficiency Podcast