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PSC Mami
PSC Mami
Monika Aldarondo

PSC Mami: Stories at the intersection of PSC and parenthood. You are diagnosed with a rare, incurable disease. You are young. You... more

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Episodes

Joanne

Joanne found community and mission after her son was diagnosed with pediatric PSC over 15 years ago   Joanne’s son... more

28 Mar 2022 · 53 minutes
Stuart

Stuart makes life changes after PSC diagnosis to spend more time with his family Stuart made a conscious decision to... more

23 Jan 2022 · 31 minutes
Laura

Laura realigned her life after her diagnosis of Primary Sclerosing Cholangitis. She refocused on family, friends, fun and her dream... more

09 Dec 2021 · 57 minutes
Jennifer

Jennifer’s experience with organ transplantation comes full circle from agreeing to donate a loved ones organs to being the recipient... more

15 Nov 2021 · 59 minutes
Nicola

Nicola finds meaning in advocacy after her transplant, post-transplant pregnancy, and surrogacy journey. Family is central to Nicola’s journey. Her... more

25 Oct 2021 · 55 minutes
Nicola

Nicola finds meaning in advocacy after her transplant, post-transplant pregnancy, and surrogacy journey. Family is central to Nicola’s journey. Her... more

25 Oct 2021 ·
Alicia

Alicia finds purpose in her toddler as her PSC progresses Alicia was diagnosed with PSC almost 20 years ago. Her... more

18 Nov 2020 · 36 minutes
Nika and Roberto

Nika and Roberto share what it was like to discuss the risks and benefits of different options for becoming parents.... more

09 Jul 2020 · 50 minutes
Bill reflects on his young son’s recent diagnosis of PSC

Bill discusses going through the process of getting his young son’s Ulcerative Colitis and Primary Sclerosing Cholangitis diagnosis, a diagnosis... more

12 Feb 2020 · 35 minutes
Alex

Alex discusses her journey up to and following her young child’s diagnosis of Primary Sclerosing Cholangitis. She reflects on her... more

25 Nov 2019 · 46 minutes
Amanda

Amanda was diagnosed with Primary Sclerosing Cholangitis at 23 and one-year into her marriage. A little over a year later,... more

29 Oct 2019 · 32 minutes
Heather has 2 girls, a new liver, and joy

Heather was diagnosed with Primary Sclerosing Cholangitis young, then made it through nursing training, graduate school, dating, getting married, and... more

20 Aug 2018 · 49 minutes
Emily has her son post diagnosis and survives UC, PSC, cancer and transplant with optimism

Emily has been battling serious illnesses, PSC, UC since she was 19, and liver cancer at 33. As a mother,... more

06 Apr 2018 · 38 minutes
Natalie explains to her young sons that mommy’s liver works a little differently

Natalie learned of her PSC diagnosis when her sons were very young. She had been pursuing the “perfect” stay-at-home-mom life... more

23 Mar 2018 · 36 minutes
Serbrina and her marriage survive and thrive post-transplant without children

Serbrina and her husband survived a 10-year waitlist for her life saving transplant made necessary by the progression of Primary... more

15 Feb 2018 · 38 minutes
Katrina has second child and peace of mind post PSC diagnosis

Katrina’s medical journey began at 15 with her Ulcerative Colitis diagnosis, but as she found experts that provided much needed... more

25 Jan 2018 · 25 minutes
Jessica decides to not have children and has no regrets

Jessica’s early and intense introduction to life saving procedures means many discussions about IVF, surrogacy, and adoption with her husband,... more

21 Dec 2017 · 39 minutes
Kiersten, a child of a PSCer, has 2 healthy children after difficult pregnancies

Kiersten knew the dangers of Primary Sclerosing Cholangitis as a result of her father’s diagnosis. She faced her own diagnosis... more

07 Dec 2017 · 44 minutes
Britt discusses easy 2nd pregnancy after PSC diagnosis

Britt was diagnosed with Primary Sclerosing Cholangitis when her daughter was 2 years old. Years later she was surprised to... more

16 Nov 2017 · 29 minutes
PSC Mami
Jessica decides to not have children and has no regretsJessica decides to not have children and has no regretsJessica decides to not have children and has no regretsJessica decides to not have children and has no regrets
PSC Mami
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Listen now on

Apple Podcasts
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Pocket Casts
Castbox
Podbean
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Player FM
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Castro
RSS

Description

Jessica’s early and intense introduction to life saving procedures means many discussions about IVF, surrogacy, and adoption with her husband, family and... more