PSC Mami: Stories at the intersection of PSC and parenthood. You are diagnosed with a rare, incurable disease. You are young. You... more
Joanne found community and mission after her son was diagnosed with pediatric PSC over 15 years ago Joanne’s son... more
Stuart makes life changes after PSC diagnosis to spend more time with his family Stuart made a conscious decision to... more
Laura realigned her life after her diagnosis of Primary Sclerosing Cholangitis. She refocused on family, friends, fun and her dream... more
Jennifer’s experience with organ transplantation comes full circle from agreeing to donate a loved ones organs to being the recipient... more
Nicola finds meaning in advocacy after her transplant, post-transplant pregnancy, and surrogacy journey. Family is central to Nicola’s journey. Her... more
Nicola finds meaning in advocacy after her transplant, post-transplant pregnancy, and surrogacy journey. Family is central to Nicola’s journey. Her... more
Alicia finds purpose in her toddler as her PSC progresses Alicia was diagnosed with PSC almost 20 years ago. Her... more
Nika and Roberto share what it was like to discuss the risks and benefits of different options for becoming parents.... more
Bill discusses going through the process of getting his young son’s Ulcerative Colitis and Primary Sclerosing Cholangitis diagnosis, a diagnosis... more
Alex discusses her journey up to and following her young child’s diagnosis of Primary Sclerosing Cholangitis. She reflects on her... more
Amanda was diagnosed with Primary Sclerosing Cholangitis at 23 and one-year into her marriage. A little over a year later,... more
Heather was diagnosed with Primary Sclerosing Cholangitis young, then made it through nursing training, graduate school, dating, getting married, and... more
Emily has been battling serious illnesses, PSC, UC since she was 19, and liver cancer at 33. As a mother,... more
Natalie learned of her PSC diagnosis when her sons were very young. She had been pursuing the “perfect” stay-at-home-mom life... more
Serbrina and her husband survived a 10-year waitlist for her life saving transplant made necessary by the progression of Primary... more
Katrina’s medical journey began at 15 with her Ulcerative Colitis diagnosis, but as she found experts that provided much needed... more
Jessica’s early and intense introduction to life saving procedures means many discussions about IVF, surrogacy, and adoption with her husband,... more
Kiersten knew the dangers of Primary Sclerosing Cholangitis as a result of her father’s diagnosis. She faced her own diagnosis... more
Britt was diagnosed with Primary Sclerosing Cholangitis when her daughter was 2 years old. Years later she was surprised to... more
Jessica’s early and intense introduction to life saving procedures means many discussions about IVF, surrogacy, and adoption with her husband, family and... more