pod.link/1314165433
pod.link copied!
PSC Mami
PSC Mami
Monika Aldarondo

PSC Mami: Stories at the intersection of PSC and parenthood. You are diagnosed with a rare, incurable disease. You are young. You... more

Listen now on

Apple Podcasts
Spotify
Overcast
Podcast Addict
Pocket Casts
Castbox
Podbean
iHeartRadio
Player FM
Podcast Republic
Castro
RSS

Episodes

Joanne

Joanne found community and mission after her son was diagnosed with pediatric PSC over 15 years ago   Joanne’s son... more

28 Mar 2022 · 53 minutes
Stuart

Stuart makes life changes after PSC diagnosis to spend more time with his family Stuart made a conscious decision to... more

23 Jan 2022 · 31 minutes
Laura

Laura realigned her life after her diagnosis of Primary Sclerosing Cholangitis. She refocused on family, friends, fun and her dream... more

09 Dec 2021 · 57 minutes
Jennifer

Jennifer’s experience with organ transplantation comes full circle from agreeing to donate a loved ones organs to being the recipient... more

15 Nov 2021 · 59 minutes
Nicola

Nicola finds meaning in advocacy after her transplant, post-transplant pregnancy, and surrogacy journey. Family is central to Nicola’s journey. Her... more

25 Oct 2021 · 55 minutes
Nicola

Nicola finds meaning in advocacy after her transplant, post-transplant pregnancy, and surrogacy journey. Family is central to Nicola’s journey. Her... more

25 Oct 2021 ·
Alicia

Alicia finds purpose in her toddler as her PSC progresses Alicia was diagnosed with PSC almost 20 years ago. Her... more

18 Nov 2020 · 36 minutes
Nika and Roberto

Nika and Roberto share what it was like to discuss the risks and benefits of different options for becoming parents.... more

09 Jul 2020 · 50 minutes
Bill reflects on his young son’s recent diagnosis of PSC

Bill discusses going through the process of getting his young son’s Ulcerative Colitis and Primary Sclerosing Cholangitis diagnosis, a diagnosis... more

12 Feb 2020 · 35 minutes
Alex

Alex discusses her journey up to and following her young child’s diagnosis of Primary Sclerosing Cholangitis. She reflects on her... more

25 Nov 2019 · 46 minutes