PSC Mami: Stories at the intersection of PSC and parenthood. You are diagnosed with a rare, incurable disease. You are young. You... more
Joanne found community and mission after her son was diagnosed with pediatric PSC over 15 years ago Joanne’s son... more
Stuart makes life changes after PSC diagnosis to spend more time with his family Stuart made a conscious decision to... more
Laura realigned her life after her diagnosis of Primary Sclerosing Cholangitis. She refocused on family, friends, fun and her dream... more
Jennifer’s experience with organ transplantation comes full circle from agreeing to donate a loved ones organs to being the recipient... more
Nicola finds meaning in advocacy after her transplant, post-transplant pregnancy, and surrogacy journey. Family is central to Nicola’s journey. Her... more
Nicola finds meaning in advocacy after her transplant, post-transplant pregnancy, and surrogacy journey. Family is central to Nicola’s journey. Her... more
Alicia finds purpose in her toddler as her PSC progresses Alicia was diagnosed with PSC almost 20 years ago. Her... more
Nika and Roberto share what it was like to discuss the risks and benefits of different options for becoming parents.... more
Bill discusses going through the process of getting his young son’s Ulcerative Colitis and Primary Sclerosing Cholangitis diagnosis, a diagnosis... more
Alex discusses her journey up to and following her young child’s diagnosis of Primary Sclerosing Cholangitis. She reflects on her... more