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About IBD
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Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.
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Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.
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1 Freelancing Freedom: Crafting Your Career While Caring for Your Health 46:18
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Play Later Play Later Lists Like LikedIt's not easy to manage both a career and chronic illness like inflammatory bowel disease (IBD, Crohn's disease, or ulcerative colitis). We need tools and tips in order to keep everything moving and succeed at work while caring for ourselves. I talk with Jen Hubley Luckwaldt about how freelancing can be a valid way of meeting both goals. Jen shares her journey from traditional employment to freelancing, including how it offers her flexibility in balancing work, health, and family. We talk about the importance of setting boundaries with clients, how to identify your marketable skills, and building a supportive community. Jen emphasizes the value of an abundance mindset in freelancing and offers practical tips for finding work and managing time effectively. If you've ever wondered how you can manage to work while still making it to infusions and appointments: we have a roadmap for you. Episode highlights: Managing a career while living with inflammatory bowel disease (IBD) Challenges of maintaining traditional full-time employment with chronic illness Advantages of freelancing, including flexibility and work-life balance Importance of setting boundaries with clients Identifying marketable skills for freelancing The role of community and support in a freelance career Strategies for effective communication and feedback in professional settings Tools and resources for freelancers to enhance productivity The concept of an abundance mindset in freelancing Find Jen Hubley Luckwaldt and The Job Hopper at: The Job Hopper: https://thejobhopper.substack.com Bluesky: @jenlucky.bsky.social Old Mom Things: https://oldmomthings.substack.com/ LinkedIn: @jen-hubley-luckwaldt Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD 171 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 Declutter Your Life While Living with Chronic Illness 1:04:57
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Play Later Play Later Lists Like LikedDo you find it difficult to find the time and energy to deal with mental or physical clutter? Lisa Zawrotny, a productivity coach and founder of Positively Productive Systems, helps us learn how to manage clutter, even when flaring. We discuss practical strategies for decluttering both your physical space and mental load, and how to celebrate even the smallest victories in your day-to-day life. Plus, Lisa reveals her insights on creating systems that work for you, no matter your circumstances. If you’ve ever felt weighed down by expectations or struggled to find balance, this episode is packed with valuable takeaways that can help you reclaim your time and energy. Key points: Intersection of productivity and chronic illness Challenges faced by caregivers and individuals with chronic conditions Personal journey of caregiving and its impact on productivity coaching Importance of compassion and realistic approaches to productivity Strategies for managing stress and clutter Prioritization of tasks and setting boundaries Techniques for decluttering and energy management Celebrating small wins and acknowledging achievements The role of journaling in emotional healing and reflection Building community and support for individuals with chronic illnesses Episode sponsored by Connecting to Cure Crohn's and Colitis . Find Lisa Zawrotny of Positively Productive Systems at: Web: www.positivelyproductive.com LinkedIn: @positivelyproductive Facebook: @positivelyproductive Twitter: @positively_lisa Instagram: @positively_lisa YouTube: @positively_lisa Tik Tok: @positivelylivingpodcast Pinterest: @positivelyproductive Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD170 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 Embracing Life with an Ostomy Featuring Danielle Barlieb 31:37
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Play Later Play Later Lists Like LikedDanielle Barlieb was diagnosed with Crohn's disease in childhood. She discusses her experiences with diagnosis, surgeries, and becoming a mother, including the challenges of a permanent ileostomy. Danielle emphasizes the importance of mental health, sharing her struggles and the support she received from her family. She also talks about dating with an ostomy, encouraging others not to let fear hold them back. Finally, she highlights her son's interests and the joy he brings to her life, along with resources for women with inflammatory bowel disease. Information and resources discussed on this episode include: National Alliance on Mental Illness Suicide Hotlines and Prevention Resources Around the World Girls with Guts Camp Oasis IBD Parenthood Project PIANO (Pregnancy Inflammatory bowel disease And Neonatal Outcomes) Study Find Danielle Barlieb at: Tik Tok: @always.danielle.barlieb Instagram: @always.danielle.barlieb Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD169 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 Why Representation Matters for the LGBTQ+ Community 51:02
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Play Later Play Later Lists Like LikedThere's a need for more research addressing social determinants of health in the inflammatory bowel disease (IBD) community. Cass Condray, an IBD researcher who also lives with an IBD, points out the lack of information and resources focused on the unique experiences of LGBTQ patients. Cass also talks about the significance of representation in research, and the impact that intersecting identities have on people's health outcomes. Plus, we talk about Cass' web site, PrideAndPoop.com, what his hopes are for the future, and what there is to do in Oklahoma. Find Cass Condray at: Web: Pride and Poop Bluesky: @cdalecondray.bsky.social LinkedIn: Cass Condray Google Scholar: Cass Dale Condray Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD168 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 How to Thrive as a Parent with IBD Featuring Jaime Holland 40:31
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Play Later Play Later Lists Like LikedAmber hands over hosting duties to Jamie Holland, a patient advocate with Crohn's disease. They discuss their personal experiences with inflammatory bowel disease (IBD). They focus on Amber's decision to have j-pouch surgery after being diagnosed with dysplasia and the effects it had on her fertility. Jamie asks Amber to share about the emotional and physical challenges of motherhood with IBD, including fatigue and guilt. They also touch on the possibility of passing IBD on to children and the importance of community and support. Concepts discussed on this episode: Xue M, Leibovitzh H, Jingcheng S, et al. Environmental Factors Associated With Risk of Crohn's Disease Development in the Crohn's and Colitis Canada - Genetic, Environmental, Microbial Project . Clin Gastroenterol Hepatol . 2024;22(9):1889-1897.e12. doi:10.1016/j.cgh.2024.03.049. Singh N, Bernstein CN. Environmental risk factors for inflammatory bowel disease . United European Gastroenterol J . 2022;10(10):1047-1053. doi:10.1002/ueg2.12319. Oh SJ, Kim HJ, Lee CK; Big Data Research Group (BDRG) of the Korean Society of Gastroenterology. A dose-dependent increase in the risk of inflammatory bowel disease after exposure to broad-spectrum antibiotics: A national population study in Korea . Aliment Pharmacol Ther . 2023;58(2):191-206. doi:10.1111/apt.17542 Growing Up With a Dog Might Lower Crohn’s Risk My IBD Life Parenthood Project Inflammatory Bowel Disease (IBD): Everything You Need to Know Find Jaime Holland at: Facebook: @prettyrottenguts Instagram: @prettyrottenguts Tik Tok: @prettyrottenguts Bluesky: @prettyrottenguts.bsky.social Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD167 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 Navigating Hernia Surgery Featuring Mike Tresca 1:22:35
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Play Later Play Later Lists Like LikedAmber is joined by her husband, Mike, who recently underwent robotic hernia surgery. In this candid conversation, they explore the entire experience—from the initial discovery of the hernia to the surgery itself and the recovery process that followed. Mike shares his insights on the challenges he faced, including unexpected pain, dietary adjustments, and the importance of having a supportive caregiver. They also discuss the nuances of patient-provider communication and how to navigate the complexities of post-surgery life. Whether you’re considering surgery or simply curious about the process, this episode offers valuable lessons and firsthand experiences that might resonate with you. Episode transcript and more information at: https://bit.ly/AIBD166 Find Michael Tresca at World of Welstar: Twitter: @WorldofWelstar Instagram: @world_of_welstar Facebook: @worldofwelstar MeWe: http://tinyurl.com/MeWeTRPG Threads: http://tinyurl.com/threadsWOW Bluesky: https://blskyl.ink/worldofwelstar Amazon: http://amzn.to/41jMn5h EN World: http://tinyurl.com/ENWRPG Drive Through RPG: http://tinyurl.com/DTRPGMNT Patreon: https://www.patreon.com/talien Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
Amber shares some of the books she read over the previous year including biographies, young adult fiction, bestsellers, and romance. Hear about Amber's reading list from 2024, which was truly a mixed bag. The good news is that it contains something for everyone. Plus: learn about how you can read or listen to books for free using your local library — maybe without even leaving your house. Library apps mentioned in this episode: Libby Hoopla Freegal Music Books mentioned in this episode: Leave the World Behind by Rumaan Alam The Giver by Lois Lowry Warrior Girl Unearthed by Angeline Boulley The Woman in Me by Britney Spears My Sister, the Serial Killer by Oyinkan Braithwaite Yellowface by R. F. Kuang Everyone Here Is Lying by Shari Lapena The Cloisters by Katy Hays Rebel Rising by Rebel Wilson I am Not Your Perfect Mexican Daughter by Erika L. Sanchez Once There Were Wolves by Charlotte McConaghy Hello, Molly! by Molly Shannon Leslie F*cking Jones by Leslie Jones Everything, Everything by Nicola Yoon Funny Story by Emily Henry Snowglobe by Soyoung Park Find Katie Connelly and the Chronically Ch(ill) Book Club at: Instagram Discord Server Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD165 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 "Fine" Dining With Crohn's Disease Featuring Michael Ornelas 1:02:19
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Play Later Play Later Lists Like LikedWhat's the difference between ulcerative colitis and Crohn's disease? We talk about them like they're two distinct sides of a spectrum, but there are people who don't have a firm place on that continuum. Amber Tresca talks with Michael Ornelas, host of the "Fine" Dining podcast, about his journey with IBD. Michael was first diagnosed with proctitis, then Crohn's disease, and later, maybe, with ulcerative colitis. Michael shares his experiences with symptoms, treatments, and the impact IBD has on life. But it's not all serious! Michael also talks about his comedy podcast, "Fine" Dining, which encompasses the search for mediocrity in chain restaurants. Maybe an unexpected choice for a project for person with IBD, so they also discuss Michael's unique perspectives on food. Find Michael Ornelas and the "Fine" Dining Podcast at: Web: https://www.finediningpodcast.com/ Tik Tok: @finediningpodcast Instagram: @finediningpodcast YouTube: @finediningpodcast Spotify: https://open.spotify.com/show/0YQGBigjvjtme7rYqrHZRw? Apple Podcasts: https://podcasts.apple.com/us/podcast/fine-dining/id1649646224 Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD164 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 "3 Kidneys, No Colon" With Dave Piontkowski 40:06
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Play Later Play Later Lists Like LikedFor people living with inflammatory bowel disease (IBD), the path to pursuing our dreams can look different from that of our peers. Stand-up comedian Dave Piontkowski, lives with not only ulcerative colitis, but also chronic kidney disease. He developed a one-man show called "Three Kidneys, No Colon," which describes his journey with both of these conditions. Dave talks about how and why his comedy actually improved while he was fighting for his life with kidney disease. He also tells us how his comedy is connecting the chronic illness community, but there are some audience members who find it can be too much. Find Dave Piontkowski at: YouTube: @dpcomedy Instagram (check his bio for show tickets): @davepcomedy Get tickets to 3 Kidneys No Colon in Tampa, FL on December 7 at 8:00 p.m (The Commodore, 811 E. 7th Ave. Tampa, FL 33602) Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD163 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
Alicia and Robin, co-hosts of the "Bowel Moments" podcast, join Amber for a discussion about podcasting in the IBD community. Robin shares her IBD journey, including her diagnosis of ulcerative colitis, the complications that led to an ileal anal anastomosis, the later diagnosis of Crohn's disease, and evebtyak J-pouch surgery. They also talk about the challenges of producing the podcast, the importance of therapy, and keeping up a social media presence. The conversation highlights the emotional and logistical aspects of creating a podcast about IBD. Select episodes of Bowel Moments: Bowel Moments Episode 1 : Get to know your co-host Robin and Alicia! Bowel Moments Episode 6 : A Tale of 2 Surgeries Bowel Moments Episode 20 : Meet Robin's Daughters - Logan & Baylee! Find Robin and Alicia on Bowel Moments at: Web: BowelMomentsPod.com Facebook: @thebmpodcast Twitter: @bowelmomentspod Instagram: @bowelmomentspod LinkedIn: Bowel Moments Pod Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD162 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 Finding the Balance - Honoring Veteran's Day With Stephanie Gish 59:18
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Play Later Play Later Lists Like LikedStephanie Gish, host of the Crohn's Fitness Food podcast, gives the details of her journey with Crohn's disease and IGA nephropathy. Stephanie's Crohn's symptoms began in 2003, but she was initially misdiagnosed with an anal fissure. After being discharged from the Army for medical reasons unrelated to IBD, she went through years of fragmented care, and finally received a Crohn's diagnosis in 2009. Stephanie brought her knowledge of health and fitness to bear in managing Crohn's, but the diagnosis of IGA nephropathy had her changing course and rethinking her approach. Buy "Crohn's, Fitness, Food and My Rock Road to Health" at Amazon: Paperback Ebook Audiobook Find Stephanie Gish at: Web: Crohn's Fitness Food Facebook: @crohnsfitnessfood Podcast: Crohn's Fitness Food LinkedIn: @stephlivsey Instagram: @crohnsfitnessfood Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD161 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
Amber interviews Alison McGauley, a teacher and author of "Kenzie's Little Tree," a children's book about a girl whose mother lives with chronic illness. Alison shares her journey with ulcerative colitis, irritable bowel syndrome (IBS), and ankylosing spondylitis, and how her hospitalization impacted her two daughters. She emphasizes the importance of talking about illness with children to help them process their emotions. Alison’s book, set to release in March 2025, aims to provide a narrative for families dealing with chronic illness. Pre-orders are available, with proceeds donated to Crohn's and Colitis Canada and the Arthritis Society. Buy Alison's book: https://www.alisonmcgauley.com/books/my-books Find Alison McGauley at: Web: https://www.alisonmcgauley.com Facebook: @author.alison.mcgauley Twitter: @AlisonMcgauley YouTube: @AlisonMcGauleyAuthor Instagram: @alisonmcgauley Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD160 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 Choosing Ostomy Surgery With Hannah Martin-Spencer 58:46
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Play Later Play Later Lists Like LikedIs it surprising to learn that some people living with IBD choose to have ostomy surgery? Hannah, a 24-year-old woman, shares her journey through the initial symptoms of IBD at the age of 15, to getting a diagnosis of ulcerative colitis. She describes how her symptoms worsened after diagnosis, including bleeding, bowel urgency, and fatigue, which led to multiple hospitalizations. Hannah advocated for surgery to treat her pancolitis, despite an initial difference of opinion with her medical team. After surgery, Hannah's symptoms were significantly improved and she regained a sense of normalcy in her life. Hannah discusses the pros and cons of choosing an ostomy over a J-pouch, the importance of quality of life, and how surgery could impact her future fertility. Concepts discussed on this episode: Yang X, He M, Tang Q, et al. Assessment of anti-inflammatory efficacy of acupuncture in patients with inflammatory bowel disease: A systematic review and meta-analysis. Complement Ther Med. 2023;74:102946. doi: 10.1016/j.ctim.2023.102946 . Bao C, Wu L, Wang D, et al. Acupuncture improves the symptoms, intestinal microbiota, and inflammation of patients with mild to moderate Crohn's disease: A randomized controlled trial. EClinicalMedicine. 2022;45:101300. doi: 10.1016/j.eclinm.2022.101300 . Bae JH, Kang SY, You SE, Jeong HI, Jang S, Kim KH. The Effects of Acupuncture on Crohn's Disease: a systematic review and meta-analysis. J Pharmacopuncture. 2023;26(3):211-226. doi: 10.3831/KPI.2023.26.3.211 . Find Hannah Martin-Spencer on: Instagram: @hans_colitisjourney Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD159 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
Christina King shares her journey with being diagnosed with Crohn's disease in 2021. She was misdiagnosed with gastritis and hemorrhoids, until her severe symptoms of rectal bleeding and weight loss, plus multiple trips to the emergency department led to a hospitalization. An in-patient colonoscopy finally led to a diagnosis of Crohn's, and she was finally able to get treatment and improve. She was unable to go to school with her high school graduating class, and is now ready to start pursuing her dream of becoming a nurse. Christina tells Amber where she went for information in the early days after diagnosis and how she's approaching accommodations for IBD as she begins school. Find Christina King at: Twitter: @cking5498 Instagram: @christina_king227 SnapChat: @christinaking16 Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD158 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
The relationship between patient and physician in inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis) is so critical to the success of the management of the disease. Both the patient and the physician have roles to play in developing and maintaining a good working relationship. One such example of a truly special and inspirational patient-physician relationship is illustrated here between Dr Julie Spivack, a gastroenterologist with Connecticut GI, and Rosa, her patient. Rosa and Dr Spivack discuss their close bond and how the listening, empathy, honesty, and open-mindedness work to build trust and achieve successful outcomes in patient-physician relationships Find Julie Spivack, MD at: Web: Connecticut GI Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD157 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 Coping With IBD While in Military Service With Dr Anish Patel 44:43
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Play Later Play Later Lists Like LikedWhat do all the new oral drugs available for treating IBD have to do with military service? Being diagnosed with IBD might mean leaving the military for some service members. Part of the reason is that it’s not possible to be deployed while receiving a drug that’s an injection or an infusion. But when a medication works well and happens to be in pill form: that’s a game-changer. Dr Anish Patel, the Medical Director of the Inflammatory Bowel Disease Center at Brooke Army Medical Center gives an update on how IBD is treated in the military, what he sees on the horizon for IBD, and his best advice for every patient living with a chronic illness. Episode transcript and more information at: https://bit.ly/AIBD141 Find Anish Patel, DO, LTC, FACG, FAGA at: Facebook: https://www.facebook.com/anish.patel.31392/ Facebook: https://www.facebook.com/profile.php?id=100089635157883 Instagram: https://www.instagram.com/anishpa81/ Twitter: https://twitter.com/FocusGI2022 LinkedIn: https://www.linkedin.com/in/anishpa-armyibd/ Web: https://www.focusgi.org/ Resources: Crohn’s and Colitis Foundation, Veterans with IBD: https://www.crohnscolitisfoundation.org/veterans Facebook Support Group for Veterans with IBD: https://www.facebook.com/groups/525843515658644 VA Podcast Network: https://news.va.gov/va-podcast-network/ My HealtheVet: https://www.myhealth.va.gov/mhv-portal-web/home Veterans Crisis Line: https://www.veteranscrisisline.net/ Research: Fragmented care and IBD: Outcomes in U.S. veterans: https://ihpi.umich.edu/news/fragmented-care-and-ibd-outcomes-us-veterans Irritable Bowel Syndrome in U.S. Veterans: https://www.verywellhealth.com/ibs-in-veterans-1944720 Kent KG. Prevalence of gastrointestinal disease in US Military Veterans under outpatient care at the Veterans Health Administration. SAGE Open Med . 2021;9:20503121211049112. doi:10.1177/20503121211049112 https://pubmed.ncbi.nlm.nih.gov/34646564/ Bookwalter DB, Roenfeldt KA, LeardMann CA, Kong SY, Riddle MS, Rull RP. Posttraumatic stress disorder and risk of selected autoimmune diseases among US military personnel. BMC Psychiatry. 2020;20(1):23. doi:10.1186/s12888-020-2432-9 https://pubmed.ncbi.nlm.nih.gov/31941473/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: Sound engineering courtesy Mac Cooney: Facebook: https://www.facebook.com/maccooneycomposer Instagram: https://www.instagram.com/maccooneycomposer/ "IBD Dance Party" Single: https://maccooney.bandcamp.com/track/ibd-dance-party-single ©Cooney Studio: http://cooneystudio.com/…
Being diagnosed with a chronic condition is a major adjustment. Digestive conditions like IBD (Crohn’s disease and ulcerative colitis) wind up affecting every part of our lives. Learning to accept the ways in which the disease affects life can be helpful. But it’s important to make the distinction between acceptance and complacency. Maalvika Bhuvansunder, a young adult patient living with Crohn’s disease, uses her experiences to help bring the concept of acceptance into focus for other people who are living with a chronic condition. Concepts discussed on this episode: What Is a Bowel Obstruction?: https://www.verywellhealth.com/what-is-a-bowel-obstruction-1943010 Bowel Obstruction Surgery: Everything You Need to Know: https://www.verywellhealth.com/surgery-for-a-bowel-obstruction-796815 6 Types of Colectomy Surgery: https://www.verywellhealth.com/types-of-colectomy-surgery-1943059 Parasites - Amebiasis - Entamoeba histolytica Infection: https://www.cdc.gov/parasites/amebiasis/general-info.html Gargallo-Puyuelo CJ, Alfambra E, García-Erce JA, Gomollon F. Iron Treatment May Be Difficult in Inflammatory Diseases: Inflammatory Bowel Disease as a Paradigm. Nutrients. 2018;10(12):1959. Published 2018 Dec 11. doi:10.3390/nu10121959 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316243/ Episode transcript and more information at: https://bit.ly/AIBD1 40 Find Maalvika Bhuvansunder at: Adventure and Travel with Chronic Illness: https://youtu.be/yw1KNhSyVLg LinkedIn: http://linkedin.com/in/maalvika-bhuvansunder Instagram: https://www.instagram.com/maalvika_bhuvansunder Web: https://www.ccyanetwork.org/fellow-projects Find Amber J Tresca: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: Sound engineering courtesy Mac Cooney: https://www.facebook.com/maccooneycomposer "IBD Dance Party" Single: https://maccooney.bandcamp.com/track/ibd-dance-party-single ©Cooney Studio: http://cooneystudio.com/ These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
Menopause is a topic that's not well understood in general and there's even less information when it comes to menopause and inflammatory bowel disease (IBD, Crohn’s disease and ulcerative colitis). October is World menopause Awareness Month. World Menopause Day is on October 18 every year. The purpose of the day is to raise awareness of menopause and the support options available for improving health and well being. Learn more about how IBD may affect perimenopause and menopause, as well as the reverse. Concepts discussed on this episode: World Menopause Day: https://www.imsociety.org/education/world-menopause-day/ The North American Menopause Society: https://www.menopause.org/home Menopause and IBD: What a Gastroenterologist Wants You to Know: https://gastrogirl.com/menopause-and-ibd/ Living Well with IBD: Women's Health and IBD: https://www.youtube.com/watch?v=sWcQsiQDvKk Can You Treat Menopause Symptoms With Over-the-Counter Medications: https://www.goodrx.com/conditions/menopause/over-the-counter-relief-options Maya Minding Menopause: A 4-Part Series: https://mayafellernutrition.com/maya-minding-menopause/ Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio LinkedIn: @macooney Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD139 Sources: 1. Rolston VS, Boroujerdi L, Long MD, et al. The influence of hormonal fluctuation on inflammatory bowel disease symptom severity—a cross-sectional cohort study. Inflamm Bowel Dis. 2018;24:387–393. doi:10.1093/ibd/izx004 2. Lichtarowicz A, Norman C, Calcraft B, Morris JS, Rhodes J, Mayberry J. A study of the menopause, smoking, and contraception in women with Crohn's disease. Quarterly Journal of Medicine. 1989;72:623–631. 3. Kane SV, Reddy D. Hormonal replacement therapy after menopause is protective of disease activity in women with inflammatory bowel disease. Am J Gastroenterol. 2008;103:1193–1196. doi:10.1111/j.1572-0241.2007.01700.x 4. “The 2022 Hormone Therapy Position Statement of The North American Menopause Society” Advisory Panel. The 2022 hormone therapy position statement of The North American Menopause Society. Menopause. 2022;29(7):767-794. doi:10.1097/GME.0000000000002028 5. Lungaro L, Costanzini A, Manza F, et al. Impact of Female Gender in Inflammatory Bowel Diseases: A Narrative Review. J Pers Med. 2023;13(2):165. Published 2023 Jan 17. doi:10.3390/jpm13020165 6. Lewandowski K, Kaniewska M, Więcek M, et al. Risk Factors for Osteoporosis among Patients with Inflammatory Bowel Disease-Do We Already Know Everything?. Nutrients. 2023;15(5):1151. Published 2023 Feb 24. doi:10.3390/nu15051151 7. Schüle S, Rossel JB, Frey D, et al. Widely differing screening and treatment practice for osteoporosis in patients with inflammatory bowel diseases in the Swiss IBD cohort study. Medicine (Baltimore). 2017;96(22):e6788. doi:10.1097/MD.0000000000006788 8. Hidalgo DF, Boonpheng B, Phemister J, Hidalgo J, Young M. Inflammatory bowel disease and risk of osteoporotic fractures: A meta-analysis. Cureus. 2019;11:e5810. doi:10.7759/cureus.5810 9. Palomba S, Manguso F, Orio F Jr, et al. Effectiveness of risedronate in osteoporotic postmenopausal women with inflammatory bowel disease: a prospective, parallel, open-label, two-year extension study. Menopause. 2008;15(4 Pt 1):730-736. doi:10.1097/gme.0b013e318159f190 Additional Sources: Gold EB. The timing of the age at which natural menopause occurs. Obstet Gynecol Clin North Am. 2011;38:425–440. doi:10.1016/j.ogc.2011.05.002 Sheth T, Pitchumoni CS, Das KM. Musculoskeletal manifestations in inflammatory bowel disease: a revisit in search of immunopathophysiological mechanisms. J Clin Gastroenterol. 2014;48:308–317. doi:10.1097/MCG.0000000000000067 Harbord M, Annese V, Vavricka SR, et al. The first European evidence-based consensus on extra-intestinal manifestations in inflammatory bowel disease. J Crohns Colitis. 2016;10:239–254. doi:10.1093/ecco-jcc/jjv213…
Colon cancer is being diagnosed more frequently in younger people. It’s now recommended that most people get a screening colonoscopy at the age of 45. For people who have a family history of colon cancer, the first screening should be when they are 10 years younger than the family member was when they were diagnosed. My guest is my husband, Michael Tresca, who recently had a screening colonoscopy after turning 50. He details his experiences in using a newer prep and how he managed the process. If there is a person in your life that is due for their screening, I hope you’ll share this with them. And if you’re someone who is involved in administering screening colonoscopies, I hope you’ll listen to get an unfiltered perspective. Find Michael Tresca at World of Welstar: Twitter: @WorldofWelstar Instagram: @world_of_welstar Facebook: @worldofwelstar Patreon: https://www.patreon.com/talien Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio LinkedIn: @macooney Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD138 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 Managing IBD Diet and Lifestyle With Clemmie Oliver 51:30
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Play Later Play Later Lists Like LikedDiet does matter in inflammatory bowel disease (IBD). Not only in how it affects the digestive system, but also in overall health. Adults with IBD have greater incidences of heart disease, lung disease, cancer, diabetes, arthritis, kidney disease, liver disease, and ulcers than do people without IBD. For those reasons and more: thinking about diet and how it affects all these other body systems, as well as the IBD, is important. To discuss how diet relates to IBD, Amber talks to Clemmie Oliver, IBD Specialist Registered Associate Nutritionist and Nutritional Therapist (MSc, ANutr, Dip ION, mBANT, CNHC). Clemmie shares her personal journey of living with ulcerative colitis from the age of 9, undergoing surgery, and ultimately receiving a j-pouch. She covers the impact of her condition on her family, particularly her parents and siblings. Clemmie also emphasizes the importance of nutrition in maintaining health and how dietary choices can influence j-pouch function. She provides practical advice for navigating social situations, such as parties and work dinners, where dietary restrictions may apply. She encourages open communication with healthcare professionals and offers thoughts on adapting food textures to better suit those with stomas or internal pouches. Find Clemmie Oliver and the Lifestyle Medicine Clinic Ltd at: Facebook: @nalmclinic Instagram: @clemmieolivernutrition Web: nalmclinic.com Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio LinkedIn: @macooney Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD137 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 Where to Invest Money: Healthcare Disparities in IBD 21:11
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Play Later Play Later Lists Like LikedInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. One of the barriers to addressing disparities is money. It's an unfortunate fact that the healthcare system in the United States is intertwined with money. In some cases, access to care and other equity issues might be solved by putting some funding towards the problems. That's why I asked my guests a really broad question: If you received grant money, where would you allocate it in order to address disparities? You'll hear from Dr Aline Charabaty, Melodie Narain-Blackwell, Dr Cedric Pulliam, Dr Fasika Shimeles Teferra, and Brooke Abbott to find out what this panel says about where we should be focusing our efforts in combating healthcare disparities in the IBD space. Find Amber J Tresca at AboutIBD.com , Verywell , Facebook , Twitter , Pinterest , and Instagram . Credits: Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio .…
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About IBD
1 We Have to Invest in the Health Wealth of Our Nation With Brooke Abbott: Healthcare Disparities in IBD 43:33
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Play Later Play Later Lists Like LikedHealthcare is political. That's why it's important to push legislators to ensure care is available and accessible to all patients, regardless of their socioeconomic status. Brooke Abbott, of the Crazy Creole Mommy Chronicles and co-founder of IBDMoms helps illustrate the aspects of public policy that are important in achieving equity in healthcare. In this discussion you'll learn how lack of access to educational opportunities affects the healthcare space, how some provisions in the Affordable Care Act help reduce disparities, and why access to technology is an important part of healthcare. Find Brooke Abbott on her blog , Facebook , Twitter , and Instagram . Find Amber J Tresca at AboutIBD.com , Verywell , Facebook , Twitter , Pinterest , and Instagram . Credits: Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio .…
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About IBD
1 I Wanted People to Know That They're Not Alone With Fasika Shimeles Teferra, MD: Healthcare Disparities in IBD 29:13
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Play Later Play Later Lists Like LikedInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. IBD is still considered rare in some parts of the world, but incidence is increasing. Fasika Shimeles Teferra, MD of Ethiopia describes her journey to a diagnosis of Crohn’s disease. Being a medical doctor, she has been able to make connections in order to help other IBD patients in her country. Patients face stigma, less than optimal care, and a lack of educational resources for themselves and their friends and family members. Dr Teferra was helping patients as best she could but discovered she needed a bigger platform. She founded a nonprofit, Crohn’s and Colitis Ethiopia, in order to better support Ethiopian patients with IBD. Find Dr Teferra on LinkedIn and Twitter and Crohn’s and Colitis Ethiopia on Facebook and their web site . More about Dr Teferra and IBD in Ethiopia: Interview with Dr Teferra on Lights, Camera, Crohn's Inflammatory bowel disease: an emergent disease among Ethiopian Jews migrating to Israel Inflammatory bowel disease in Africa: what is the current state of knowledge? Find Amber J Tresca at AboutIBD.com , Verywell , Facebook , Twitter , Pinterest , and Instagram . Credits: Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio .…
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About IBD
1 I'm Letting You In With Cedric Pulliam, PhD: Healthcare Disparities in IBD 40:05
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Play Later Play Later Lists Like LikedInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. What is it like to not have anyone on your medical team that looks like you or understands your concerns? The diversity of the human experience is often not reflected in the healthcare system. In fact, there's little research into some areas of IBD, including the experience of LGBTQIA+ patients. Dr Cedric Pulliam, Senior Public Health Advisor at the Centers for Disease Control and Prevention, had a long journey to a diagnosis of Crohn's disease, punctuated by less than helpful advice from specialists. His experiences as a public health advocate, a patient, and a gay male have brought him to be an open advocate for those in the LGBTQ community. Dr Pulliam has advice on how the IBD community can learn from other disease states in how to truly meet the needs of patients. Find Dr Pulliam on LinkedIn and Twitter . Find Amber J Tresca at AboutIBD.com , Verywell , Facebook , Twitter , Pinterest , and Instagram . Credits: Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio .…
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About IBD
1 I Want Someone Who's Going to Understand Where I'm Coming From With Selvi Vasudevan, MD: Healthcare Disparities in IBD 33:51
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Play Later Play Later Lists Like LikedInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. Nutrition is a major component of managing digestive disease. Yet people living with Crohn's disease, ulcerative colitis, or indeterminate colitis may not be offered access to help managing their diet. Dr Selvi Vasudevan, founder of Dr Selvi's Keys to Ease Crohn's, discusses her Crohn's disease journey and how it led her to pursue the role diet and nutrition play in wellness as well as the cultural influence on our food choices. A child of immigrants from southern India to the United States, she is discovering how best to integrate family life, her culture, and her needs as a person with IBD. Find Dr Selvi on Facebook, Instagram , Twitter , and on DrSelvi.com . Find Amber J Tresca at AboutIBD.com , Verywell , Facebook , Twitter , Pinterest , and Instagram . Credits: Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio .…
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About IBD
1 You Have to Genuinely and Authentically Connect With Leaders in This Space With Melodie Narain-Blackwell: Healthcare Disparities in IBD 35:51
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Play Later Play Later Lists Like LikedInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. Why do women of color encounter so many barriers when accessing care? Where are the spaces for black and brown patients to share their knowledge, experiences, and support around Crohn's disease, ulcerative colitis, and other immune-mediated and autoimmune conditions? Melodie Narain-Blackwell, founder of Color of Crohn's and Chronic Illness, discusses her Crohn's disease journey and how it led her to become a voice for the IBD community. She tells us why outreach to minority groups sometimes fails, how she approaches patient education, her ideas on giving patients improved access to care, and how motherhood affects her disease journey. Find Color of Crohn's and Chronic Illness at COCCI.org , Facebook , Twitter , and Instagram . Find Melodie Narain-Blackwell at Facebook , Twitter , and Instagram . Find Amber J Tresca at AboutIBD.com , Verywell , Facebook , Twitter , Pinterest , and Instagram . Credits: Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio .…
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About IBD
1 These Disparities Have Been Going on for a Very Long Time With Dr Aline Charabaty: Healthcare Disparities in IBD 41:29
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Play Later Play Later Lists Like LikedIn this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds who live with IBD. Why is there a lack of people of diverse backgrounds who live with Crohn's disease or ulcerative colitis represented in clinical trials? Why are there so many barriers for people of color in accessing IBD care? Dr Aline Charabaty, Director of the IBD Center at Johns Hopkins Sibley Memorial Hospital and founder of Monday Night IBD on Twitter discusses the scope of inequalities in research and access to care in IBD. What's more: she offers solutions that can be used to address disparities. Find Aline Charabaty, MD on Facebook , Twitter , Instagram , and at Monday Night IBD . Find Amber J Tresca at AboutIBD.com , Verywell , Facebook , Twitter , Pinterest , and Instagram . Credits: Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio .…
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About IBD
1 Pregnancy and IBD: The PIANO Study With Uma Mahadevan, MD 25:18
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Play Later Play Later Lists Like LikedPregnancy while living with inflammatory bowel disease (IBD) feels scary. But thanks to the groundbreaking Pregnancy Inflammatory bowel disease And Neonatal Outcomes (PIANO) study, there is now so much more data and information to help moms and their doctors make decisions. Dr Mahadevan began the PIANO registry in 2007, which followed women and their babies through pregnancy and after. What was learned from this registry was how IBD medications, and especially biologics, affected pregnancy, birth, and infants. Learn how Dr Mahadevan has grown PIANO over the years, the most important findings so far, and how pregnant women can join the study and help the next generation of moms with IBD and their babies. Find the PIANO Study at: Twitter: @PIANOIBD Web: PIANOStudy.org Find Uma Mahadevan, MD at: Twitter: @UmaMahadevanIBD LinkedIn: @uma-mahadevan-ibd Web: University of California San Francisco Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio LinkedIn: @macooney Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD136 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
Desiree Schmidt, a 500-hour yoga instructor and owner of a personal training business, shares her passion for helping people with chronic illnesses, which is inspired by her own experience with Crohn's disease. She discusses how yoga has been key in her journey, both physically and mentally. Amber and Desiree discuss the benefits of different yoga forms and how to choose the right practice based on whether one is in a flare-up or in remission. Desiree points out how it is important to modify poses when living with a health condition, including IBD, to ensure comfort and safety during classes. She offers insights into providing options for different needs, making the yoga accessible for everyone. Gain valuable insights into the world of yoga, its benefits for chronic illness, and how to embark on your own yoga practice with confidence and guidance. Find Desiree (Schmidt) VanDaalwyk, NASM-CPT, FNS at: Facebook: @desiree.schmidt.566 LinkedIn: @Desiree VanDaalwyk Instagram: @desireevandaalwyk Radect Health: Desiree Schmidt Find Dutchmen Kettlebells at: Facebook: @Dutchmenkettlebells Instagram: @dutchmenkettlebells Web: https://www.dutchmenkettlebells.com/ Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD135 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 An Ostomy Is a Beginning With Brad Watson-Davelaar 43:30
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Play Later Play Later Lists Like LikedBrad Watson-Davelaar, founder of Gaming for Guts, shares his experiences in living with Crohn’s disease and how he found support and community through his IBD journey. He talks about his ostomy surgery and how for him, it is a beginning rather than an end. Brad describes the upcoming fundraising event sponsored by Gaming for Guts to celebrate World IBD Day on May 19th. It will feature Canadian-themed activities in support of Crohn's and Colitis Canada. The IBD and gaming communities are encouraged to get involved with the fun. Brad also shares his thoughts on how the gaming community helps people with IBD connect to form meaningful relationships. Find Brad Watson-Davelaar at: Facebook: @bwdphoto Facebook: @crohnsawarenessproject Twitter: @bwdphotocanada Instagram: @bwdphoto Find Gaming4Guts at: Facebook: @gaming4guts Twitter: @gaming4guts Instagram: @gaming4guts Web: www.gaming4guts.com Discord: https://discord.gg/BpXcmz7 About IBD Episode 83: The Streamers from Gaming4Guts Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD134 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 IBD and Accommodations at Work With Katie Connelly 51:53
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Play Later Play Later Lists Like LikedAmber Tresca and Katie Connelly discuss the challenges and importance of workplace accommodations for individuals with inflammatory bowel disease (IBD). Katie has been through the process of asking for accommodations with different employers and shares her personal experience, emphasizing the need for understanding the Americans with Disabilities Act (ADA). She relates her experience and gives advice to both employers and employees on how to manage the accommodation journey. Plus, she gives the resources that she found most helpful to help her learn about her rights as an employee. Find Katie Connelly at: Spotify: Katie Connelly Web: Badass With a Bad Ass LinkedIn: Katie Connelly Instagram: @badass.w.a.bad.ass Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD156 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 Connecting to Cure Crohn's and Colitis With Stacy Dylan 53:09
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Play Later Play Later Lists Like LikedAmber is joined by Stacy Dylan, co-founder and executive director of Connecting to Cure Crohn's and Colitis (CtoC). CtoC is a patient advocacy group focused on addressing unmet needs in the IBD community. Stacy founded CtoC to help other families after her son was diagnosed with Crohn's disease. CtoC offers support groups, mentorship programs, and gut-friendly workouts. Stacy offers advice to parents of children with IBD, encouraging them to take things one step at a time and not be overwhelmed by information from the internet. Follow Connecting to Cure: Web: https://www.connectingtocure.org Twitter: @connecttocure Instagram: @connectingtocure Facebook: @ConnectingToCure Follow Stacy’s Medium page at: https://stacyjdylan.medium.com . Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD155 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
There tend to be more women than men who share their journey with inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis). The reasons are challenging to uncover, but what's clear is that more can be done to raise the visibility of men living with an IBD, ostomy, or other digestive condition. My guest is Jordan William Henry Aggen, also known as Crohn's Trooper. Jordan emphasizes the importance of open communication, pre-planning, and finding support from friends, family, and social media to cope with the disease. Concepts discussed on this episode: Which is Nerdier: Star Wars or Star Trek? Find Jordan William Henry Aggen at: Facebook: @JWHA2011 Instagram: @crohnstrooper Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD154 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
Dr Iris Wang, assistant professor in the division of Gastroenterology and Hepatology and the Associate Program Director of the GI fellowship at Mayo Clinic in Rochester, Minnesota and Amber Tresca discuss the stigma surrounding gut health and poop. Dr Wang shares the experience of writing a children's book focused on preventing and managing constipation titled "Boo Can't Poo!" They also discuss the challenges of publishing a book on gut health and the potential benefits of talking about poop and toileting, emphasizing the importance of open communication and personalized treatment. Listen to learn about where you can get "Boo Can't Poo!" and how parents with IBD can manage their anxiety around the idea of their kids developing IBD. Order "Boo Can't Poo!" ISBN 9798887701431: Mayo Clinic Press Amazon Barnes and Noble Bookshop.org Target Walmart Find Xiao Jing "Iris" Wang, MD at: Twitter: @IrisWangMD LinkedIn: @xiao-jing-wang-b755339 Instagram: @iriswangmd Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD153 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
What is being done to help prevent inflammatory bowel disease (IBD) in the next generation? The Genetic, Environmental, Microbial (GEM) Project is a research study from Crohn's and Colitis Canada (CCC) focused on finding possible causes for Crohn’s disease by following healthy people who are at a higher risk for developing the disease. To talk about GEM, Amber interviews CCC volunteer Chantel Wicks. Chantel is the chapter president for the Durham Region in Ontario and the Chair of their Gutsy Walk, which is a fundraiser and event that takes place every year in the first weekend of June. Learn more about how the GEM Project is uncovering important information on the development of IBD and how to get involved in CCC and The Gutsy Walk. Find Chantel Wicks on the Guts and Glory Podcast at: Web: https://gutsnglory.ca/ Facebook: @GtsNGlry Twitter: @GtsNGlry Instagram: @gtsnglry Find Crohn's and Colitis Canada at: Web: https://crohnsandcolitis.ca/ The Gutsy Walk: https://gutsywalk.ca/ Facebook: @getgutsycanada Twitter: @getgutsycanada Instagram: @getgutsycanada Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD152 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
Did you notice that suddenly one year you started paying more for your healthcare? Crohn's disease and ulcerative colitis are sometimes treated with medications that are expensive. Manufacturers create programs to help patients afford these drugs. In the beginning, these payments from assistance programs counted toward a yearly health insurance deductible. Then, suddenly: they stopped counting. Overnight, patients found themselves responsible for more costs, while insurance carriers received what amounts to double payments. A 2023 court ruling says that this practice should be reversed again, but it's not happening. Amber McCown tells her story of how a copay accumulator program took her by surprise and why she's partnering with the HIV+Hepatitis Policy Institute and working with legislators and agencies to advocate for change. Aimed Alliance. How a Loophole in the Patient Protection and Affordable Care Act Can Impact Access To Your Necessary Treatments: https://aimedalliance.org/wp-content/uploads/2022/07/Aimed-Alliance-Non-EHB-Fact-Sheet-FINAL-1.pdf Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2021; Notice Requirement for Non-Federal Governmental Plans: https://www.federalregister.gov/documents/2020/05/14/2020-10045/patient-protection-and-affordable-care-act-hhs-notice-of-benefit-and-payment-parameters-for-2021 Copay Accumulator Programs: https://cga.ct.gov/2024/rpt/pdf/2024-R-0034.pdf?t=1713267305928 State Insurance Departments: https://content.naic.org/state-insurance-departments From the HIV+Hepatitis Policy Institute: In 2022, the HIV+Hepatitis Policy Institute , two diabetes groups, and individual chronic disease patients filed a lawsuit in the U.S. District Court for the District of Columbia challenging the federal rule that allowed "copay accumulators." Insurers use "copay accumulator" programs to avoid counting the value of copay coupons that patients get from drug manufacturers toward a patient's deductible and out-of-pocket costs -- effectively double charging the patients. In 2023, the court ruled in favor of the plaintiffs and struck down the federal rule that had allowed health insurers to avoid counting copay assistance from drug manufacturers toward a patient's out-of-pocket cost. But the government isn't enforcing the court's ruling, so patients are still subject to copay accumulator schemes. It's bad enough that the federal government is effectively ignoring a court ruling . Far worse is the fact that patients are still being unjustly subjected to copay accumulators that prevent them from being able to afford their prescription drugs as a result. Patients need the federal government to issue a new rule ASAP. Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD151 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 IBD and Somatic Therapy With Abri Bernstein 53:24
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Play Later Play Later Lists Like LikedPeople with IBD are more likely to live with anxiety, depression, or other mood disorders than people who don't live with one of these conditions. For that reason, caring for mental health is as important as caring for physical health. But it doesn't always work out that way, as patients may not know how important their mental health is to their physical health, or may not have access to a mental health professional. Abri Bernstein shares her personal journey with ulcerative colitis (UC) and how somatic psychotherapy helped her cope with living with the disease. Abri explains somatic psychotherapy as a holistic approach to healing that focuses on the body and nervous system regulation. She describes various modalities, such as somatic experiencing, sensorimotor psychotherapy, and acceptance and commitment therapy (ACT), emphasizing the importance of addressing trauma stored in the body for healing to occur. Resources and information discussed in this episode: What Is Somatic Therapy? Trauma and the Nervous System: A Polyvagal Perspective Polyvagal Institute The Trauma Foundation Bonaz B, Sinniger V, Pellissier S. Therapeutic Potential of Vagus Nerve Stimulation for Inflammatory Bowel Diseases. Front Neurosci. 2021;15:650971. Published 2021 Mar 22. doi:10.3389/fnins.2021.650971. Polyvagal Theory: A Science of Safety Find Abri Bernstein at: Web: Healing With Abri LinkedIn: Abri Berstein Email: abribern@gmail.com Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD150 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 Colorectal Cancer Awareness Month With Dan "Dry Dock" Shockley 32:51
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Play Later Play Later Lists Like LikedDiagnosed with attenuated familial adenomatous polyposis (AFAP), retired Navy veteran Dan "Dry Dock" Shockley shares his remarkable journey of service, diagnosis, and advocacy. Following his diagnosis, Shockley became a passionate advocate for early detection and reducing the stigma associated with living with an ostomy. He emphasizes the importance of proactive medical care and maintaining a positive attitude in the face of adversity. Through his advocacy work and personal journey, Shockley serves as an inspiration, demonstrating resilience, determination, and a commitment to making a difference for others. Find Dan "Dry Dock" Shockley at: Twitter: @Dryshockley Instagram: @DanDryDock LinkedIn: @Dan Dry Dock Shockley Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD149 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 Making Crohn's Disease Funny With Matt Nagin 36:35
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Play Later Play Later Lists Like LikedWe can hold two truths: Crohn’s disease is funny. It is also not funny. I speak with Matt Nagin, who has many talents, but we focus on his work as a comedian and actor living with Crohn’s disease. Our discussion focuses on how people need laughter and comedy in their lives. Yet, living with an illness like inflammatory bowel disease (IBD), it can be challenging to find those comedic moments. Especially when most people don’t know what IBD is, and even among those who do, they kind of don’t want to hear about it sometimes. Get tips from Matt on how to form a sense of humor about illness, keep people from getting burned out on you, and think outside the box when it comes to symptoms. Find Matt Nagin at: Web: mattnagin.com Facebook: @naginplease Twitter: @naginplease Instagram: @naginplease TikTok: @naginplease LinkedIn: Matt Nagin Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio LinkedIn: @macooney Theme music, IBD Dance Party , is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
What did you read over the past year? If you made a reading goal: did you hit it? The books I read in 2023 included biographies, fantasy, fiction, and romance. Plus, I had several authors who live with Crohn’s disease or ulcerative colitis on the show this year, so I read their books as well. Hear more about some of the books I enjoyed in 2023, how you can hear more from authors with IBD, and ways that you can hit those reading goals this year. IBD Author Episodes: The Plant-Based Crohn’s and Colitis Cookbook – About IBD Podcast Episode 127 Up and Adam: A Patient’s Experience on Winning with IBD — About IBD Podcast Episode 130 I Pooped My Pants With April Michelle Harris – About IBD Podcast Episode 133 Positivity Beats IBD With Josef Miller – About IBD Podcast Episode 143 Books mentioned in this episode: Why Not Me? - Mindy Kaling Yes Please - Amy Poehler Bossypants - Tina Fey Orange Is the New Black - Piper Kerman Spare - Prince Harry Born With Teeth - Kate Mulgrew Where the Deer and the Antelope Play - Nick Offerman Fan Fiction - Brent Spiner, Jeanne Darst Wrong Place Wrong Time - Gillian McAllister Tomorrow, and Tomorrow, and Tomorrow - Gabrielle Zevin The Dead Romantics - Ashley Poston Where the Crawdads Sing - Delia Owens The House in the Pines - Ana Reyes The Testaments - Margaret Atwood The Heart Goes Last - Margaret Atwood Maid - Stephanie Land Class - Stephanie Land Under the Whispering Door - TJ Klune In the Lives of Puppets - TJ Klune Long Way Down - Jason Reynolds Red at the Bone - Jackeline Woodson Hatchet - Gary Paulsen The Plant-Based Crohn’s and Colitis Cookbook - Helena Rose Murphy The Purple Rose - Josef Alexander Miller I Pooped My Pants - April Michelle Harris Up and Adam: A Patient's Experience on Winning with IBD - Adam Finkelstein Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio LinkedIn: @macooney Theme music, IBD Dance Party , is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
A diagnosis of inflammatory bowel disease (Crohn’s disease, ulcerative colitis, IBD) affects the entire family. When it’s a child that’s diagnosed, it changes so many things and brings a host of challenges. Families experience many unmet needs related to IBD. My guest is Lisa Fournier of IBD Connect. Lisa is the mother of two children who live with IBD. Her experiences in helping them manage IBD at different stages in life compelled her to be a support for others. She worked with her local hospital to start a support group and eventually founded IBD Connect. Learn about the programs IBD Connect offers and how the community can support their important mission. Concepts on this episode: Very Early Onset Inflammatory Bowel Disease (VEO-IBD) UMass Chan Medical School Center for Applied Nutrition Methicillin-resistant Staphylococcus aureus (MRSA) Find IBD Connect at: Instagram: @ibdconnectinc Facebook: @IBDConnectInc Web: IBD Connect, Inc. Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD146 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 Post-Traumatic Stress Disorder and IBD With Stephanie Brenner, LCSW, MSW 46:17
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Play Later Play Later Lists Like LikedMy guest is Stephanie Brenner of Chronic Illness Psychotherapy. Stephanie is a Licensed Clinical Social Worker who has experience in working with clients with chronic illnesses. She has also taken on a variety of roles in GI space, including previously serving on both the advisory team for the Pediatric Crohn’s Guidebook and the recruitment committee for the Rome Foundation’s GastroPsych organization. Stephanie lives with Crohn’s disease and a permanent ileostomy and is also a cancer survivor. I asked her to help us better understand PTSD and PTS as they relate to having a chronic illness like IBD. She defines PTSD and why it can happen with IBD, what some of the signs and symptoms might look like, and what patients can do to address their mental health. Episode transcript and more information at: https://bit.ly/AIBD145 Find Stephanie Brenner, LCSW, MSW at: Web: https://chronicillnesspsychotherapy.com/ Facebook: https://www.facebook.com/chronicillnesspsych Concepts discussed: An Overview of Rectovaginal Fistula: https://www.verywellhealth.com/rectovaginal-fistula-overview-4587356 An Overview of Anal or Rectal Abscess: https://www.verywellhealth.com/perirectal-abscess-2328821 Proctectomy Surgery for Inflammatory Bowel Disease: https://www.verywellhealth.com/proctectomy-surgery-for-inflammatory-bowel-disease-4122490 Sacha McBain, PhD: https://www.linkedin.com/in/sachamcbain/ What Is Post-Traumatic Stress Disorder (PTSD)?: https://www.verywellhealth.com/what-is-ptsd-5084527 The Psychology of the Sickbed: https://www.amazon.com/Psychology-Sickbed-J-H-Berg/dp/B004NMY0RK Taft TH, Quinton S, Jedel S, Simons M, Mutlu EA, Hanauer SB. Posttraumatic Stress in Patients With Inflammatory Bowel Disease: Prevalence and Relationships to Patient-Reported Outcomes. Inflamm Bowel Dis. 2022;28(5):710-719. doi:10.1093/ibd/izab152 What Is EMDR Therapy?: https://www.verywellhealth.com/emdr-therapy-5212839 Understanding Diaphragmatic Breathing: https://www.verywellhealth.com/diaphragmatic-breathing-how-to-benefits-and-exercises-5219974 All About Grounding: Techniques to Connect to Nature: https://www.verywellhealth.com/grounding-7494652 Self-Report PTSD Checklist for DSM-5 (PCL-5): https://www.ptsd.va.gov/professional/assessment/documents/PCL5_Standard_form.pdf (other checklists https://www.ptsd.va.gov/professional/assessment/adult-sr/ptsd-checklist.asp#obtain ) Rome Foundation: https://romegipsych.org/ Samantha Irby: https://www.samanthairby.com/ Tig Notoro: https://tignation.com/ Hannah Gatsby: https://hannahgadsby.com.au/ Cameron Esposito: https://www.instagram.com/cameronesposito/ Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio LinkedIn: @macooney Theme music, IBD Dance Party , is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 IBD in the Hispanic Community With Oriana Damas, MD 39:19
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Play Later Play Later Lists Like LikedAs an assistant professor of medicine in the Division of Gastroenterology at the University of Miami Miller School of Medicine, and the Director of Translational Studies for the Crohn’s and Colitis Center, Dr. Damas sheds light on the misconception that IBD only affects certain ethnicities. Her extensive research explores the connection between of environment and genetics in the development of IBD, with a special focus on its impact on immigrants from Latin America. Dr. Damas shares insights into the challenges of studying the role of diet in IBD, revealing key findings from her research and explaining how her work is reshaping our understanding of these diseases. Find Oriana Damas, MD at: University of Miami: Oriana Mazorra Damas, M.D. Twitter: @oridamas Dr Damas' Research: The Current State of Care for Black and Hispanic Inflammatory Bowel Disease Patients Social barriers influence inflammatory bowel disease (IBD) outcomes and disproportionally affect Hispanics and non-Hispanic Blacks with IBD Low-Fat, High-Fiber Diet Reduces Markers of Inflammation and Dysbiosis and Improves Quality of Life in Patients With Ulcerative Colitis Ethnicity influences risk of inflammatory bowel disease (IBD)-associated colon cancer: a cross-sectional analysis of dysplasia prevalence and risk factors in Hispanics and non-Hispanic whites with IBD Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD143 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
What is it like to be a teen living with Crohn’s disease? If you’re like Josef Miller, you channel the challenges of the diagnosis and management of IBD into action. Josef has written a book about his experiences, entitled "The Purple Rose," and created an initiative called "Positivity Beats IBD," which creates inspirational cards for people living with IBD and other conditions. Learn about Josef's journey with Crohn's, his multicultural background, and how and why he decided to write a book. Find Josef Miller at: Instagram — Positivity Beats IBD: @positivity_beats_ibd Instagram — Josef Miller: @josefjm13 Book: The Purple Rose Book: The Axolotl That Lost Himself Connecting to Cure Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD143 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 Designer $hit: A Microbiome Love Story With Saffron Cassaday 27:51
27:51 Play Later Play Later Lists Like Liked27:51
Play Later Play Later Lists Like LikedWhat options are you wiling to try to manage your ulcerative colitis or Crohn’s disease? How about putting someone else’s stool into your own colon? Fecal microbiota transplants (FMTs) — using stool from a donor to repopulate bacteria in the colon — are being studied for use in treating inflammatory bowel disease (IBD). Filmmaker Saffron Cassady decided to try do-it-yourself FMT to treat her ulcerative colitis, using stool from the healthiest person she could find: her husband. The journey is captured in her film, Designer $hit, which explores both the science and potential behind FMT. Learn about why she decided to take a chance on FMT, how it has impacted her life, and where you can see Designer $hit. Learn where you can attend a screening: https://designershit.eventive.org/schedule Episode transcript and more information at: https://bit.ly/AIBD142 Find Saffron Cassaday and Designer $hit at: Web: Designer $hit Twitter: @Designer_Shit_ TikTok: @designershitdocumentary YouTube: Designer $hit Facebook: @Designer Shit Instagram: @designershtdocumentary Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio LinkedIn: @macooney Theme music, IBD Dance Party , is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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The Wise Traditions podcast is for those who seek optimal health, based on ancient wisdom. We believe that vibrant health cannot be cultivated in a lab, engineered through modern technology or found through “improving” nature. On the contrary, “life in all its fullness is mother nature obeyed,” as Dr. Price put it. We thrive when we live as our ancestors did, and we can look to the past for clues on how to go about it. This show, sponsored by the Weston A. Price Foundation, is an invitation ...
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The Model Health Show is a fun, entertaining, and enlightening look at health and fitness. No subject is off limits here! World-renown author and nutritionist Shawn Stevenson breaks down complex health issues and makes them easy to understand and overcome. Whether it's weight loss, chronic fatigue, heart disease, diet, exercise, sex, hormones, sleep problems, or countless other health topics, the insights you get here will help you transform your health and live your best life ever.
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Learn the connection between what you eat and how you feel. Join us each week as licensed nutritionists and dietitians from Nutritional Weight & Wellness share practical, real-life solutions for healthier living through balanced nutrition. For over 25 years, we’ve helped thousands of clients and listeners discover how real food – animal protein, healthy fat, nutrient-dense carbohydrates – can increase energy, stabilize moods, jumpstart metabolism, eliminate cravings, restore digestion, balan ...
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Have you ever wondered if there’s a natural way to lower your high blood pressure, guard against Alzheimer’s, lose weight, and feel better? Well, as it turns out, there is. Michael Greger, M.D. FACLM, founder of NutritionFacts.org and New York Times best-selling author of How Not to Die, How Not to Diet, and the just-released How Not to Age, uncovers the best evidence-based nutrition that may add years to our life and life to our years.
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