BloodStream
By BloodStream Media
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Category: Mental Health
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Subscribers: 2
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Episodes: 100
Description
BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.
| Episode | Date |
|---|---|
|
I’m Fine: The Devil You Know
|
Apr 04, 2025 |
|
HFA CEO Dan Kelsey & Gene Therapy w Brendan Hayes
|
Mar 31, 2025 |
|
I'm Fine: Honesty & Lies
|
Mar 21, 2025 |
|
NBDF CEO Phil Gattone + Dr. Nathan Connell on ASH Highlights
|
Mar 14, 2025 |
|
I'm Fine: The First Fracture
|
Mar 07, 2025 |
|
Happy Rare Disease Day!
|
Feb 28, 2025 |
|
The wisdom of advocate Corbin Whittington
|
Feb 14, 2025 |
|
Dr. Ben Samelson-Jones on Gene Therapy
|
Jan 24, 2025 |
|
Behind the Mystery: Rare and Genetic Diseases
|
Jan 10, 2025 |
|
Max Feinsten talks elbow surgery
|
Dec 27, 2024 |
|
Jonathan Cappiello is 1 out of 20
|
Dec 13, 2024 |
|
Voices for Policy Change + 2025 HFA Preview with CEO Dan Kelsey
|
Nov 22, 2024 |
|
Gene Therapy Roundtable and Honoring Jess McLean (Page)
|
Nov 08, 2024 |
|
NBDF CEO drawing inspiration from local communities
|
Oct 25, 2024 |
|
The new insurance nightmare you need to know about
|
Oct 11, 2024 |
|
International Plasma Awareness Week, y’all!
|
Sep 27, 2024 |
|
Live at BDC with CEO Phil Gattone!
|
Sep 13, 2024 |
|
Hemophilia Film: What We Wished We Could Be
|
Aug 23, 2024 |
|
Gene Therapy Reimbursement? We got you covered.
|
Aug 09, 2024 |
|
The Dark Side of High Achievement
|
Jul 26, 2024 |
|
Clinical Trials, Caregiving, and NEW MUSIC!?
|
Jul 12, 2024 |
|
The multi-faceted role of HTC social workers
|
Jun 28, 2024 |
|
Life with an Invisible Disorder
|
Jun 14, 2024 |
|
Mild Hemophilia Matters
|
May 24, 2024 |
|
UK Blood Inquiry Clive Smith & Laurence Woollard
|
May 10, 2024 |
|
Navigating the Currents: Interferons in the Treatment of Polycythemia Vera
|
May 03, 2024 |
|
On the Shoulders of Giants is a hit (!) and I’m Fine is back
|
Apr 26, 2024 |
|
New NBDF CEO, Phil Gattone
|
Apr 12, 2024 |
|
Dr. Glenn Pierce on the upcoming WFH Congress + CEO of Plasma Protein Therapeutics Association, Anita Brikman
|
Mar 22, 2024 |
|
Highlights from ASH with Dr. Akshat Jain
|
Mar 08, 2024 |
|
HFA CEO Dan Kelsey and Rare Disease Day tribute
|
Feb 23, 2024 |
|
NBDF welcomes new CEO; HFA responds
|
Feb 09, 2024 |
|
Preserving Tainted Blood History and Bath Bleeds
|
Jan 26, 2024 |
|
Shakeup at HFA and a brand new Gene Therapy segment!
|
Jan 12, 2024 |
|
SNL screws up sickle cell.
|
Jan 04, 2024 |
|
The World Health Organization (WHO) gets it wrong
|
Dec 08, 2023 |
|
The Dark Side of Resilience + The Gratitude Game
|
Nov 24, 2023 |
|
Resisting Change and Holiday Dynamics
|
Nov 10, 2023 |
|
Introducing PNH: Facts, Fiction & FYI!
|
Nov 03, 2023 |
|
Rugby & Hemophilia and Treatment Transitions w/ Mosi Williams
|
Oct 27, 2023 |
|
Sexual Intimacy, Artificial Intelligence in Healthcare, and Mindset
|
Oct 13, 2023 |
|
Dr. Akshat Jain and NHL coach David Quinn
|
Sep 25, 2023 |
|
Embracing Change in Hemophilia Care and Back to School
|
Sep 08, 2023 |
|
Patrick and Amy’s BDC Recap!
|
Aug 25, 2023 |
|
Taylor Swift changes Amy’s life, plus a new segment, and other stuff.
|
Aug 11, 2023 |
|
NHF rebrand w/ Len Valentino & SHEmophilia w/ Priscilla Oren
|
Jul 27, 2023 |
|
It’s here: Gene Therapy for Hemophilia A
|
Jul 14, 2023 |
|
Music w/ Max Feinstein and FLOW with Jessica Lauren Richmond
|
Jun 23, 2023 |
|
World Sickle Cell Day & Sing Me A Story
|
Jun 09, 2023 |
|
SHEmophilia, Music, and Michael Bishop
|
May 25, 2023 |
|
Fitusiran overview with Dr. Guy Young
|
May 12, 2023 |
|
The Ethics of Gene Therapy and a conversation with Gunnar Esiason
|
Apr 28, 2023 |
|
World Hemophilia Day and new music from Tamar Mitchell
|
Apr 14, 2023 |
|
So, we hit a nerve
|
Mar 24, 2023 |
|
Own Your Path
|
Mar 10, 2023 |
|
Rare Disease Day and Living in the Almost
|
Feb 24, 2023 |
|
Dear Hemophilia Community: A Warning
|
Feb 17, 2023 |
|
Washington Days and Amy’s Big Win
|
Feb 10, 2023 |
|
Connie Montgomery and a Let’s Talk Segment featuring Mike Hargett
|
Feb 03, 2023 |
|
Dr. Steven Pipe on HEMGENIX, hemophilia B’s first gene therapy
|
Jan 27, 2023 |
|
Legislative wins and losses & CDC’s Aditi Kantipuly
|
Jan 13, 2023 |
|
A Year in Review with NHF CEO, Len Valentino!
|
Dec 23, 2022 |
|
Gene Therapy is Here (Kinda!)
|
Dec 09, 2022 |
|
It’s gratitude season, plus takeaways from WFH Gene Therapy Roundtables!
|
Nov 25, 2022 |
|
Are patient influencers a good thing?
|
Nov 11, 2022 |
|
Patrick’s new freedoms and restrictions post-op, plus Michelle Conde and the Glanzmann's Research Foundation
|
Oct 28, 2022 |
|
LGBTQ+ health issues w/ Dr. Nathan Connell and a vWD story of first pregnancy, labor, and delivery
|
Oct 14, 2022 |
|
Panel: Diversity, Equity & Inclusion in bleeding disorders, plus “living in the moment.”
|
Sep 23, 2022 |
|
Pain, Mental Health, & Life Updates w/ Cazandra Campos-Macdonald & Laurence Woollard
|
Sep 09, 2022 |
|
The Most Common Bleeding Disorder You’ve Never Heard Of
|
Aug 26, 2022 |
|
A women’s movement’s a brewin’
|
Aug 12, 2022 |
|
Sexual health and bleeding disorders
|
Jul 22, 2022 |
|
The Making of The Final Summit and Science Making a Difference in Rare Disease
|
Jul 08, 2022 |
|
Thalassemia’s dynamic duo, Dr. Kevin Kuo and Dr. Hanny Al-Samkari, plus aging and changing on Let’s Talk
|
Jun 24, 2022 |
|
Rare Disease Podcasters on Patient-Centricity and a new segment of The Well!
|
Jun 10, 2022 |
|
Women prioritized at World Congress and coping with loss for Mental Health month
|
May 27, 2022 |
|
Journey to Joint Health Panel - LIVE from HFA!
|
May 13, 2022 |
|
Live from HFA w/ Keynote Speaker, Zander Masser!
|
Apr 29, 2022 |
|
Live from HFA w/ Keynote Speaker, Adar Cohen!
|
Apr 22, 2022 |
|
HFA Preview, Honoring Those We’ve Lost, and an Extended Teaser!
|
Apr 15, 2022 |
|
Brian O’Mahony, Origins of Ankle Pain, and Foam Rollers!
|
Apr 08, 2022 |
|
Solo Dad Life, MASAC Meeting, and Thalassemia in the News(room)!
|
Mar 25, 2022 |
|
Living Beyond the Diagnosis with Kristin Eilenberg of EE Minds, a program designed for parents who have children with medical conditions, plus HFA is back and a chat with Josh Bragg!
|
Mar 11, 2022 |
|
Let’s celebrate Rare Disease Day with Brendan Hayes and a Let’s Talk from Josh Bragg!
|
Feb 25, 2022 |
|
FLOW co-host, Sarah Watson; community member, Jim Mueller and introducing The Global Hemophilia Report w/ Dr. Donna DiMichele
|
Feb 11, 2022 |
|
Dr. Guy Young on new gene therapy trial data and Patrick’s BIG secret!
|
Jan 28, 2022 |
|
Val Bias, a tribute: "Life's work is in the getting there."
|
Jan 21, 2022 |
|
Save One Life and WFH plus updated gene therapy trial news!
|
Jan 14, 2022 |
|
Patrick and Amy’s Top Ten Top Ten Lists of 2021
|
Dec 24, 2021 |
|
State of the Organizations w/ Dr. Len Valentino & Sharon Meyers
|
Dec 10, 2021 |
|
Diversity, Equity, and Inclusivity in Bleeding Disorders w/ Connie Montgomery
|
Nov 26, 2021 |
|
Informed consent for hemophilia gene therapy w/ authors Laurence Woollard, Dakota Rosenfelt, and Richard Gorman
|
Nov 12, 2021 |
|
Rare Patient Voice w/ Wes Michael + Let’s Talk w/ Josh Bragg
|
Oct 22, 2021 |
|
Luke Pembroke gene therapy clinical trial catchup + pain and storytelling w/ Mel Forrest
|
Oct 08, 2021 |
|
Does chronic illness lead to feeling “less than?”
|
Sep 24, 2021 |
|
Hematologists weigh in on the state of science in bleeding disorders
|
Sep 17, 2021 |
|
Best of BloodStream @ BDC 2021
|
Sep 10, 2021 |
|
BDC Preview Party w/ NHF Staff
|
Aug 13, 2021 |
|
BloodStream LIVE - HTC Psychologist Emily Wheat and new music from Max Feinstein
|
Jul 30, 2021 |
|
Baby on Tour, Shared Decision Making + the ACA is here to stay!
|
Jul 09, 2021 |